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Physical Therapy: Muscular Dystrophy

Muscular DystrophyI has a neuromuscular disorder, before physical therapy, he struggled with walking and getting himself off the floor, that kind of thing, with physical therapy, he learned how to get himself off the floor using proper techniques, how to climb stairs, just basic walking, I think that physical therapy has not only helped him get some muscle strength in his core but also confidence like, I can climb these stairs or go down the stairs in my own way, at my own pace, that I can do it myself.

I guess once you get really sick and he had his first IVIG, just walking in the grass would cause him to fall down but over the course of a few days after that and some therapy, we came on, he started walking normally and we were always concerned about the stairs and so forth but then we realised he went up two flights and one day at a soccer game, he went to a playground which had twenty flights of stairs and we don’t know how he got up there and then all of a sudden, he said, I didn't take the steps, I took the hill holding the rail using, using what he was taught and say, I went up some steps and then I took the hill and he found a way to get up.

It feels like we are doing something and we are part of the solution, sometimes, in the medical field, parents are not part of the actual medical team to help develop your child or your situation, this way, you are always involved to some degree to where you are assisting in his activity or whatever they are doing in actual therapy so I think it’s very good and his older sister gets involved as well at times and it feels like he has support from a physical therapist and the people who work there, but also the family.

I think physical therapy is a big part of the whole picture of a team effort, it takes the people that makes the orthotics, it takes the nutrition, it takes the physical medication, the doctor, the family, everything but physical therapy is one of the core pieces of getting all that combined together and making it actually work physically and I think that’s one of the most important things that you get a good physical therapy team and one person that can really help push him and make him realise stuff that he can do and give him some ideas that he can learn, I guess that’s a big bonus there.